BrainStuff Season 5 Episode 8 The Disease We Barely Know Anything About
- May 17, 2016
- 3 min
In season 5 episode 8 of BrainStuff, titled "The Disease We Barely Know Anything About," the focus is on a medical condition that very few people know about – Myalgic Encephalomyelitis, or ME for short. ME is a debilitating disease that affects around 17 million people globally, with women being four times more likely to develop it than men.
The episode begins by introducing us to Olivia, a young woman who had to stop attending classes and had to quit her job because of the severe symptoms of ME. We then hear from Dr. Alain Moreau, who explains what ME is and how it affects people. The disease is characterized by extreme fatigue that doesn't go away with rest, brain fog, body aches, and headaches. Most people with ME are unable to do any physical or cognitive activity without worsening their symptoms.
The episode delves deeper into the controversies surrounding the diagnosis, causes, and treatments of ME. There is no diagnostic blood test or scan for ME, which often leads to patients being misdiagnosed or not taken seriously by doctors. Some researchers suggest that ME is an autoimmune disorder or viral infection, while others believe it's a result of chronic inflammation caused by trauma or stress.
The show also covers the controversial approach towards cognitive and activity-based therapies as a treatment for ME. These therapies aim to gradually increase physical or cognitive activity to improve symptoms, but many patients report that this approach only worsens their condition. On the other hand, some patients report finding relief in alternative treatments such as diet changes, acupuncture, and cognitive behavioral therapy.
The episode highlights the lack of funding and research dedicated to ME, leading to a lack of understanding of the disease and its effective treatment. This has led to a prominent activist movement in the ME community, with patients and their supporters organizing protests and fundraisers to raise awareness and research funds.
Throughout the episode, we hear from patients, doctors, researchers, and advocates who offer different perspectives on ME. The show does an excellent job of conveying the complexity and severity of the disease, as well as its social and economic impacts on patients' lives.
Overall, "The Disease We Barely Know Anything About" is an informative and eye-opening episode that sheds light on a chronic illness that has been overlooked and underfunded for far too long. BrainStuff does an excellent job of presenting multiple perspectives and contrasting views, leaving viewers with a better understanding of the challenges faced by those with ME.